Pain eats your soul.
You want to move but you can’t.
Life is out there waiting,
Calling you to come out and play,
People to see, places to be,
Exciting, active and fun…
The spirit is willing, but the body is tired,
Every move jars the soul,
Pain screams around the joints,
They give way and are unstable,
Medication has a price that is just as bad.
Everybody assumes you will fully repair,
That is the confidence of youth.
You end up joining the pretence,
Because it’s easier than trying to explain.
In the end life can only get worse,
It comes sooner to some than others,
But why tell them that?
Bed becomes your torture chamber,
No position has rest,
No sleep, no respite.
The dark quiet hours make you think,
You feel the reaper in the shadows.
Death is a warm painless blanket,
Where sleep finally awaits.
No seat is comfortable,
No shoes or clothes fit without discomfort,
Everything comes with a problem,
Can’t stand, walk, sit or lay without pain,
Every bit of furniture has to be examined,
So you don’t get stuck and embarrassed.
Your painful gait gets in everyone’s way,
Too slow, with that painful limp.
No disabled parking means going home,
Having to fully open your car door,
Means traffic slows with impatient horns.
Paralympians put you to shame,
But they’re disabled not sick.
Others can’t tell the difference,
And if your sickness isn’t visible enough,
People think you’re lazy.
Many are worse off than you.
Their struggle makes your problems seem small.
It’s all a matter of perspective,
But you can only speak from your own.
Why bother to write?
Because that old man/lady hobbling in your way,
Created the world you now inhabit,
And could probably save you from many mistakes.
By Steve Rowe