Pain & Fatigue

You can’t understand if you haven’t been there.You need to walk a mile in their shoes.Or shoe.Or wheel if you can’t walk.You wake up more exhausted and in more pain than you went to bed.Too exhausted or in too much pain to shower or bath.Nausea means you feel like you’re moving when you’re still.Electric lights hurt your brain.Flashing lights and movement give you vertigo.Loud noises hurt your ears.Clothes hurt your skin, any touch is painful.Food hurts your stomach.Any medication has side effects that can make it worse.Pity hurts.Helpful suggestions hurt.Help not requested hurts.Most give up trying to get government help, … Continue reading Pain & Fatigue

Digging Deep…

Sometimes you have to dig deep, like REALLY deep.Trying to stop the body going into shock with pain.Reducing one day at a time to one breath at a time.Controlling the adrenaline from fear.When you want to run or curl up, facing it as a warrior.When you feel so angry you want to burn your world down.Controlling reckless rage and the desire to kill or maim.When I see advice from those that have never been there, I almost wish it on them.Because until you’ve REALLY been there, you can never know.Trash your ‘feel good’ memes, your fake rose tinted spectacles, and … Continue reading Digging Deep…

The Dark Side Of Pain

  Pain eats your soul. You want to move but you can’t. Life is out there waiting, Calling you to come out and play, People to see, places to be, Exciting, active and fun… The spirit is willing, but the body is tired, Every move jars the soul, Pain screams around the joints, They give way and are unstable, Medication has a price that is just as bad. Everybody assumes you will fully repair, That is the confidence of youth. You end up joining the pretence, Because it’s easier than trying to explain. In the end life can only get … Continue reading The Dark Side Of Pain